Originally Posted by
Onka
Bobby
I'm probably the person Kokuu is referring to.
Last year I developed a large clot in my right leg. Unfortunately before I got it officially diagnosed it broke up and clots went through my heart to both my lungs where a LOT of clots settled. Thankfully only one clot made it to my brain but it was in a 'safe' position.
Yes the pain is indescribable, way worse than when I broke my back. I spent many months in and out of acute care ambulances and intensive care cardio wards last year where I was asked the 'end of life plan' questions and saw others die. Not fun.
How are things now?
I'm on Warfarin for life, I have to wear a compression stocking on my right leg, I can only 'sit' with my legs elevated and straight, my right leg has scarring, as do my lungs from the clots which mean that if I push myself physically my blood pressure drops and I get really lightheaded and can faint if I don't get my legs raised ASAP. My lungs also hurt regularly and laughing leads to inability to breathe easily.
Life is very very different for me this year and my limirations affect every aspect of my lived experience. In saying this, there are tremendous positives.
I have been diagnosed as having the blood disorder Factor 5 Leiden, I am now part of the public health system so have regular appointments with lung specialists, a specialist community nurse, a heart surgeon, a urologist and my GP so my health is in great hands.
Practicewise, 'sitting' at home daily with pain, weird physical sensations in my heart, lungs and leg has been a gift that keeps giving. Shikantaza when fighting for every breath last year opened up Practice insights that have changed my life.
If asked I would suggest you follow medical advice to the letter. I would also adopt the mantra of 'do what you can, when you can, how you can, and with what you can'.
I'd also give yourself permission to feel any emotions that arise should your life look different from now on.
Be kind to yourself Bobby.
Gassho
Anna
ST/LAH
*apologies for running long